Finding out about hep C will help you plan for the future. Our Hep C Action Newsletter Program can help guide you through testing and treatment.
Recommended Resources
Many avenues of information and support are available for people with hep C, their family, and their friends. The resources listed here will provide a helpful start.
Organizations and Government Agencies
Many resources offer information about hep C and related emotional, nutritional, and legal support. Here is a list of groups you may want to contact to learn more. Please note that these sources are provided as a service to patients, not as an endorsement.
- American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038
Phone: (800) GO-LIVER (465-4837)
E-mail: webmail@liverfoundation.org
Internet: http://www.liverfoundation.org - Centers for Disease Control and Prevention (CDC)
1600 Clifton Road
Atlanta, GA 30333
Phone: (888) 4-HEP-CDC (443-7232)
Internet: http://www.cdc.gov - Hepatitis C Association Inc.
1351 Cooper Road
Scotch Plains, NJ 07076-2844
Phone: (866) 437-4377
Internet: http://www.hepcassoc.org -
Hepatitis C Caring Ambassadors
Helps patients face the challenge of hep C
Internet: http://www.hepcchallenge.org/ - Hepatitis C Support Project
P.O. Box 427037
San Francisco, CA 94142
Phone: (415) 978-2400
E-mail: sfhepcat@pacbell.net
Internet: http://www.hcvadvocate.org - Hepatitis Central
State-by-state index of support groups
Internet: http://hepatitis-central.com/hcv/support/main.html - Hepatitis Education Project
Internet: hhttp://www.scn.org/health/hepatitis - Hepatitis Foundation International
504 Blick Drive
Silver Spring, MD 20904-2901
Phone: (800) 891-0707 or (301) 622-4200
E-mail: hepfi@hepfi.org
Internet: http://www.hepfi.org - Hep C Advocate Network
Internet: http://www.hepcan.org -
Hep C Alert
Provides health education, counseling, testing and
linkage services both nationally and to the South
Florida community.
Internet : http://hep-c-alert.org/index.htm - Hep C Connection
1177 Grant Street
Suite 200
Denver, CO 80203
Phone: (800) 522-HEPC (4372) or (303) 860-0800
Internet: http://www.hepc-connection.org - Latino Organization for Liver Awareness
P.O. Box 842
Throggs Neck Station
Bronx, NY 10465
Phone: (888) 367-LOLA (5652)
Internet: http://www.lola-national.org - National AIDS Treatment Advocacy Project (NATAP)
580 Broadway, Suite 1010
New York, NY 10012
Phone: (888) 26-NATAP (62827) or (212) 219-0106
Internet: http://www.natap.org - National Association of State and Territorial AIDS Directors
Internet: http://www.nastad.org - National Digestive Disease Information Clearinghouse (NDDIC)
2 Information Way
Bethesda, MD 20892-3570
Phone: (800) 891-5389 or (301) 654-3810
Fax: (301) 907-8906
E-mail: nddic@info.niddk.nih.gov
Internet: http://digestive.niddk.nih.gov - National Hepatitis C Advocacy Council
Internet: http://www.hepcnetwork.org - National HIV/AIDS Hotline
American Social Health Association
P.O. Box 13827
Research Triangle Park, NC 27709
Phone: (800) 342-AIDS (2437)
Internet: http://www.ashastd.org - National Institutes of Health’s National Institute of Diabetes & Digestive & Kidney
Disorders (NIDDK)
Building 31, Room 9A04 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Phone: (800) 891-5389 or (301) 496-3583
Internet: http://digestive.niddk.nih.gov/ddiseases/pubs/hepc_ez - National Viral Hepatitis Roundtable
Internet: http://www.nvhr.org - Right Start: A Community Education Program
14252 Culver Drive, A526
Irvine, CA 92604
Phone: (866) 762-9295
Internet: http://www.hcvandme.org - United Network for Organ Sharing
P.O. Box 2484
Richmond, VA 23218
Phone: (888) 894-6361
Internet: http://www.unos.org
Related Links
General information about hepatitis A, hepatitis B, and hepatitis C is available at:
- U.S. Centers for Disease Control and Prevention
- U.S. National Institutes of Diabetes & Digestive & Kidney Disorders
Additional information about the hepatitis C virus, how it is spread, diagnosis, and how to avoid transmission is available from the following organizations:
- National Library of Medicine’s Hepatitis C Health Information
- Patient Education: National Hepatitis C Program
- U.S. Centers for Disease Control and Prevention
- U.S. National Institutes of Diabetes & Digestive & Kidney Disorders
- U.S. Department of Labor, Occupational Safety and Health Administration Universal Precautions (Bloodborne Pathogens)
Information about general health management for people with hepatitis C is available via the following links:
- “How to Live With Hepatitis,” a fact sheet provided by Hepatitis Foundation International
- “Coping With Hepatitis C: Diet & Nutrition,” provided by the National Hepatitis C Program
- “Telling People You Have Hepatitis C,” provided by the National Hepatitis C Program
- “Hepatitis C Advocate,” provided by the Hepatitis C Support Project
New privacy laws about medical information and medical records can be found at:
Support Groups
For comprehensive lists of support groups for people with hepatitis C, their family members, and their friends, visit:
If you are seeking assistance with an alcohol or drug problem, Alcoholics Anonymous or Narcotics Anonymous can help. Online, you can locate support groups in your area.
Recovery Connection (RCx) offers addiction treatment and drug rehab referrals nationwide. Learn about symptoms of alcoholism, drug addiction, substance abuse and treatment centers at www.recoveryconnection.org.
Rules and regulations have been established regarding medical conditions and the workplace. Know your rights! Some information about federal labor laws is required to be posted in every workplace. For additional details, the following government information can be accessed directly:
- Americans With Disabilities Act
- Equal Employment Opportunity Commission
- Family and Medical Leave Act of 1993
